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Addressing The Fear Of An Autism Diagnosis

Addressing the Fear of an Autism Diagnosis

Nothing is more terrifying for a parent than learning that their child has a disability. Expectations during prenatal times give way to fears of what to do if their child is diagnosed with any kind of disorder. Parents of children with autism often question what they could have, or should have done, to prevent this condition.

Though the cause and makeup of autism are unknown, parents can take advanced steps in early detection and diagnosis if the symptoms are present. Overcoming the fear of diagnosis and understanding the root cause of the fear can make a difference in how a family will cope with the diagnosis or the possibility of such an event.

Overcoming the fears associated with autism for parents can be as simple as spending as much time with the child as possible in order to understand where they are in their individual state of development. Engaging the child, even if the efforts seem to fail, can make a difference. Every child is unique, and in the case of a child with autism, it is essential to dropping the usual expectations that are often present in parents of young children. Autism is a silent disorder with many different aspects related to and dependent on their individual needs.

Some parents use their fear and turn it into a positive force, engaging their child with autism in activities that exercise their mind and their body in hopes of reaching into the dark places of the child that often seem very hard to access. One notable author and father of an autistic son takes his child on hikes, often deep into the mountains, all the while talking, teaching, and engaging. The worst thing a parent can do in the case of a diagnosis is to ‘give up on the fact that the child can or will take an active role in everyday activities.

Another way to alleviate fear is to take an active role in autism communities that offer education, support, and ways to become actively involved. Anything that a parent can do to get involved, not only in the recovery or education of their own child but also in the community of parents that seems to grow every day will help.


Learning from the child while teaching them may help alleviate some fears that a parent can have in regards to the child with autism. Books, articles, websites, and even educators themselves can often give conflicting information, creating fear and confusion in the family. The best way for a parent to overcome the fear and learn about this epidemic disorder is to focus on their child.

References:

TACA-Talk About Curing Autism, After the Autism Diagnosis, retrieved 3/26/11, tacanow.org/family-resources/after-the-autism-diagnosis-staying-connected-as-a-couple/

Web M.D., Autism-Making the Diagnosis, retrieved 3/26/11, webmd.com/brain/autism/searching-for-answers/symptoms

About.com, Overcoming the fear of Autism, retrieved 3/26/11, autism.about.com/b/2010/06/15/overcoming-fear-of-autism.htm

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Being an RBT for me was extremely fun because where were you going to find a place where you can be completely silly without having to worry what people thought about you? This was the only job that made me feel like I could make a dramatic difference while being myself.

I also liked to be surrounded by people that had the same goals of wanting to help kids and the teamwork made the job much easier and more enjoyable.

Change and progress was the ultimate goal for our kiddos. The early intervention program was seriously only a miracle because I saw changes in the kiddos that from day one, you wouldn’t even recognize who they were.

Changes from being able to utter 3-4 words where they can only make a syllable from when they started, the behavior decreases in which kiddo that used to engage in 30-40 0 self-harm to only half, learning how to wait during games, table work where they use to swipe and drop to the floor if they had to.

My favorite was when the parents would tell us what amazing progress they were making at home. I used to tear up and felt for these parents so much because it was already difficult for them and now, they can trust and rely on ABA and the therapists knowing their goal was ours.

By Emma Rogers, BA, RBT

Mother Child
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